Who we are

We are rare disease nurses, genetic counsellors, parents to children with rare disease, people that have rare diseases ourselves or people who are passionate about making a positive difference.


Kay Parkinson

Founder and Company Secretary
Founder of Alstrom UK

Helena Baker

Co-founder and Interim CEO
Nurse, Clinical Consultant and Rare Disease patient


Alex Evans

CEO RareiTi and Director at RDNN

Brian Flatley

Head of Consulting Services, S3 Connected Health and co-founding Director at RDNN

Neil Dugdale

Pharmaceutical consultancy, mentor at Start Codon and co-founding Director at RDNN

Tracey Murray

Matron, Outpatients Dept Addenbrookes Hospital and co-founding Director at RDNN


Michelle Conway

Nurse and Founder of CRD Consulting, Advisor to RDNN

Claire Adams

Senior Lecturer, Adult Nursing, University of Hertfordshire, Advisor to RDNN

Mabella Farrer

Nurse (Adult and Paediatric) and Registered Genetic Counsellor, Addenbrookes Hospital, Advisor to RDNN