Care Coordination for people living with a rare condition is challenging at best and for many feels like an uphill struggle every day. To mark #rarediseaseday22 RDNN are speaking to stakeholders from across the rare disease community to understand how care coordination can be batter and how RDNN can help.
In this interview, Helena Baker Interim CEO of RDNN and Michelle Conway, Policy Advisor for RDNN speak to Natalie Frankish, the Policy and Engagement Manager from Genetic Alliance UK about her work on improving care coordination in Scotland. This discussion highlights the importance of care coordination but also many of the challenges in trying to embed services into policy and the difficulties of developing new services for rare conditions.
You can watch the full interview here