Latest News

Find out more about RDNN activities and upcoming events.

News

RDNN Achieves Charitable Status

Press Release| August 2022
Find out more
News

RCN are attending the RCN Congress in Glasgow

6th-8th June 2022
Find out more
News

Care Coordination in Wales- Recommendations from the Rare Disease Nurse Network to the Rare Disease Implementation Group (RDIG)

Michelle Conway | April 2022
Find out more
Event

Rebecca Pender explains the challenges of caring for a child living with a rare conditions and the impact of sub-optimal care coordination.

Rebecca Pender April 22
Find out more
News

Simon Mouncer Joins RDNN as Finance Director

Simon Mouncer
Find out more
News

Rare Disease Health Policy in the US

Cassandra Smith BSN, RN
Find out more
Event

Helena Baker the Interim CEO of RDNN discusses her experience of living with a rare condition in this podcast from Medics 4 Rare Diseases.

Helena Baker
Find out more
Event

Here from Trudy Morgan and Helen Wilde from Glut1 Deficiency UK about the role of the charity in supporting their members with care coordination

14th March 2022
Find out more
Event

Kay Parkinson, Founder of RDNN speaks to Frontline Genomics

Kay Parkinson
Find out more
Event

What did the CONCORD study tell us about the care coordination needs of people living with a rare condition

7th March 2022
Find out more
Event

Developing a Care Coordination Service for Rare Conditions

February 2022
Find out more
News

RDNN support Rare Disease Day 2022

Rare Disease Day 2022 | 28th February
Find out more
News

RDNN invited to present at the 16th Orphan Drugs & Rare Diseases Global Congress 2022 Europe

Helena Baker | 17th February 2022
Find out more
News

RDNN support Genetic Alliance UK with a Survey on Care Coordination in Wales

Responses Required by 16th November
Find out more
News

Having a rare disease is difficult – gaining access to good coordinated care shouldn’t be!

Michelle Conway
Find out more
Event

Inaugural RDNN Webinar

Liz Morris, Lead Specialist Nurse in Lysosomal Storage Disorders
Find out more
Event

Rare Disease Webinar “Connecting the Dots in Rare Disease Service Provision”

Neil Dugdale | February 2021
Find out more