Rebecca Pender April 22

Rebecca Pender explains the challenges of caring for a child living with a rare conditions and the impact of sub-optimal care coordination.

In this interview with Rebecca Pender, mum of 9 year old Hannah who lives with several rare conditions, we hear about the reality of caring for someone living with a rare condition and the impact that sub-optimal care coordination has on a family. We are very grateful to Rebecca for sharing her story with us and raising awareness of the importance of improving care coordination in delivering good quality care for all those affected by a rare condition.

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