7th March 2022

What did the CONCORD study tell us about the care coordination needs of people living with a rare condition

Care Coordination for people living with a rare condition is challenging at best and for many feels like an uphill struggle every day. To mark #rarediseaseday22 RDNN are speaking to stakeholders from across the rare disease community to understand how care coordination can be batter and how RDNN can help.

In this interview Helena Baker, CEO of RDNN, and Michelle Conway, Policy Advisor to RDNN, speak to Dr Holly Walton, Research Fellow in the Department of Applied Health Research at University College London, about her work as part of the team who undertook the CONCORD (CoOrdinated Care Of Rare Diseases) study. Hear from Holly about their findings and how these findings could be used to support the development of services.

News

RDNN Achieves Charitable Status

Press Release| August 2022
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News

RCN are attending the RCN Congress in Glasgow

6th-8th June 2022
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News

Care Coordination in Wales- Recommendations from the Rare Disease Nurse Network to the Rare Disease Implementation Group (RDIG)

Michelle Conway | April 2022
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